The combination of these two diagnoses has resulted in physical and cognitive limitations for Bree. She can scoot on the floor, but she is unable to walk. She has a manual wheelchair that a caregiver pushes, especially at school and in the community. Bree‘s father is in the military, and he just recently deployed for one year. The deployment has left mom as the sole caregiver. Bree does have a nurse at home during the day while mom works, but not in the evenings or weekends. Being the sole caregiver has placed additional hardship on mom in an already difficult situation.
The biggest challenge in the home is the inaccessible bathroom. The door is not wide enough to accommodate a wheelchair or shower chair, and the bath is a standard shower/tub combo. Mom has to carry Bree, weighs approximately 60 pounds, lower her into the tub, and then lift her out wet following her bathing. The transferring creates numerous opportunities for injury to both Bree and her mom.