Meet Alexis. Alexis is a spunky and adorable 6-year-old girl. Her life suddenly changed in 2019 when she was diagnosed with a femur fracture. It was eventually determined that the femur fracture was a result of Gorham-Stout Disease, a rare bone disorder characterized by progressive bone loss (osteolysis) and the rapid reproduction (proliferation) of lymphatic vessels.
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A video was made of one of our clients, David, sharing his story.
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Meet Bree. Bree is a sweet 9-year-old girl with a rare chromosomal disorder that affects only approximately 100 individuals in the world. She also has another diagnosis of Lennox-Gastault syndrome. The combination of these two diagnoses has resulted in physical and cognitive limitations for Bree. She can scoot on the floor but she is unable to walk. She has a manual wheelchair that a caregiver pushes, especially at school and in the community.
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We at Tucker’s House have a core belief that drives us in everything we do. We believe that every child should have the ability to feel at home. We manifest this belief in our specific mission to partner with families who have children with disabilities to make their homes safer and more accessible. However, there is a myriad of ways to carry out that belief in our communities to people of every ability, race, gender, or any other qualifier you choose. We are all God’s children. We are all neighbors. We should all feel at home.
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